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Gabrielle LaVerde Fighting Niemann-Pick Type C

This is a place for me, Gabrielle's Mother, to share my thoughts, current and previous, about the ordeal we experienced while trying to find a diagnosis. The purpose of this diary is to educate and create awareness for parents who are lost in their search for finding a diagnosis and a cure for their children, who may have Niemann-Pick Type C. For more information, visit us on Gabrielle's website, http://www.GabrielleLaVerde.com

Friday, May 2, 2008

Addi and Cassi on ABC's Good Morning America

Watch this spectacular coverage on two young twins who suffer from Niemann-Pick Type C.

http://abcnews.go.com/GMA/OnCall/Story?id=4760023&page=1

Posted by Danielle at 12:30 PM

Labels: Other Parents of Children with Niemann-Pick

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All of Gabrielle's Videos

The Big Give for Gabrielle Continues

Gabrielle

Gabrielle

Labels

A Mother's Diary (1)
Other Parents of Children with Niemann-Pick (2)
Poems and Prayers (2)
Press Releases (2)
The Big Give (2)

FOX 35 Covers Gabrielle's Big Give

$FOX 35 Covers Gabrielle\$
Fox 35 News Orlando Interviews Danielle and Gabrielle LaVerde about Deltona Lakes Elementary's Big Give

A Mother's Diary

Every Precious Moment - Fox 35 Interview

Every Precious Moment - Fox 35 Interview

Fox 35 Interviews Danielle and Gabrielle in February, 2008

About Gabrielle

Danielle: A very special little girl who has incredible love and support from her family, friends, and her school mates! To send cards or letters to Gabrielle, please send to P.O. Box 391231, Deltona, FL 32739-1231

View my complete profile

Donations

Send your kind Donations for Gabrielle's medical expenses, by mail, send directly to Gabrielle's Trust Account at Sun Trust, Attention Jessica for Gabrielle LaVerde, 2602 Enterprise Road, Deltona, FL 32763 1-800-786-8787 or 386-775-8878 Donations for Gabrielle's medical expenses sent via paypal are sent directly to Gabrielle's Trust Account with Sun Trust Bank, Deltona, Florida

What you Didn't Know about Alzheimer's

Niemann-Pick Informative News & Links

http://www.ohsu.edu/stemcellstrial/
http://www.medicalnewstoday.com/articles/94435.php
http://www.centredaily.com/business/story/330246.html
http://www.medicinenet.com/script/main/art.asp?articlekey=86417
http://www.news-medical.net/?id=34569
http://www.madison.com/tct/news//index.php?ntid=268672
http://www.guardian.co.uk/science/2008/jan/23/stemcells.genetics1?gusrc=rss&feed=networkfront
http://www.mirror.co.uk/news/topstories/2008/01/31/only-6-and-leah-s-got-alzheimer-s-89520-20303924/
http://www.biocellcorp.com/products_bluei.htm
http://www.medicalnewstoday.com/articles/96165.php
http://abcnews.go.com/Health/story?id=3931445&page=1