Central Florida Prepares Big Give to Save Dying Child
DELTONA, FL/May 15, 2008 Immediate Release/ Contact: Lloyd Marcus 954-934-9588
After a local elementary school raised over $10,500 in just a few months for their classmate, Central Florida is preparing to join them in the fight to save a 6 year old student, Gabrielle LaVerde. Tucked away, in-between Daytona Beach and Orlando, an elementary school, called Deltona Lakes Elementary, which consists of 1,005 students, worked non-stop in raising awareness and collecting donations for their fellow classmate. Their fund raising ideas were creative, yet simple, and were referred to as DLE’s Big Give.
DLE’s Big Give all started with the students standing in line at the front office every morning with their piggy banks, weekly allowances, and coin jars. Once the students had raised several thousand dollars, the students solicited the help of their parents and neighbors. What followed was bake sales, talent shows, a community yard sale, and a spaghetti dinner that had profound results.
The news of the elementary school’s Big Give and this rare and fatal disease got the attention of Fox 35 News. The interview was aired May 10, 2008:
http://www.myfoxorlando.com/myfox/pages/Home/Detail?contentId=6512151&version=2&locale=EN-US&layoutCode=TSTY&pageId=1.1.1
Gabrielle LaVerde, a 1st grader, who attends DLE, has been diagnosed with a rare and fatal disease called Niemann-Pick Type C (Early Childhood Alzheimer's). Life expectancy after diagnosis is 6-10 years. Only 300 Americans have been diagnosed with this disease. Only 500 cases are known worldwide. Niemann-Pick Type C is a genetic metabolic disease that causes multiple neurological disorders.
Gabrielle's treatments run $9,000 per month. Her parents are planning to take her to Mexico for an experimental treatment. The treatment cost $19,000. Airfare, accommodations, car rental, food, and incidentals will cost approximately $5,000.
Friends of Gabrielle have asked Lloyd Marcus to help take the Big Give to the next level. Mr. Marcus is challenging Central Florida to come together as a family and rally around the LaVerde family and their adorable little girl. “Do your own creative Big Give for Gabrielle. Let's work together to SAVE GABRIELLE LAVERDE,” he said.
Please raise funds throughout the summer. Before school begins, the LaVerde family will be presented with a check from “Central Floridians for Gabrielle” at a press conference. Location and date TBA. Press conference will include recognition of major contributors, music, and celebration festivities.
National and Corporate Contributors are welcome to join this community effort.
Please mark your contribution: “Central Floridians for Gabrielle.” Contribute to GABRIELLE'S TRUST ACCOUNT By paypal on Gabrielle’s Website or directly to Sun Trust Bank Attn: Jessica for Gabrielle LaVerde / 2602 Enterprise Road / Orange City, FL 32763 or 1-800-786-8787 or 386-775-8878. To Learn More about Gabrielle visit at: http://www.GabrielleLaVerde.com or email GabrielleLaVerde@earthlink.net
FOR INTERVIEW or contact information, contact Family Spokesperson:
Gisele Veilleux 407-256-5960 or gisele.thedogliberator@gmail.com
###
This is a place for me, Gabrielle's Mother, to share my thoughts, current and previous, about the ordeal we experienced while trying to find a diagnosis. The purpose of this diary is to educate and create awareness for parents who are lost in their search for finding a diagnosis and a cure for their children, who may have Niemann-Pick Type C. For more information, visit us on Gabrielle's website, http://www.GabrielleLaVerde.com
Showing posts with label Press Releases. Show all posts
Showing posts with label Press Releases. Show all posts
Tuesday, May 20, 2008
Friday, May 9, 2008
Press Release, Deltona, Florida - May 9, 2008
Central Florida Unites to Save Dying Child
DELTONA, FL/May 9, 2008 Immediate Release/ Contact: Lloyd Marcus 954-934-9588
It all began with 10 year old Ryan Bowling. His mom is extremely dedicated to rescuing animals. One day when she picked Ryan up from school, he asked her an important question. “Mom, isn't saving the life of a kid more important than saving the life of a dog?” Ryan's question caught Gisele, his mom, off guard, but she replied, “Of course!”
Ryan told her about Gabrielle LaVerde, a 1st grader who attends his school. Gabrielle has been diagnosed with a rare fatal disease called Niemann-Pick Type C (Early Childhood Alzheimer's). Life expectancy after diagnosis is 6-10 years. Only 300 Americans have been diagnosed with this disease. Only 500 cases are known world wide. Niemann-Pick Type C is a genetic metabolic disease and causes multiple neurological disorders. Ryan ordered his mom to “Get to work!”
Gabrielle's treatments run $9,000 per month. Her parent's are planning to take her to Mexico for an experimental treatment. The treatment cost $19,000. Airfare, accommodations, car rental, food and incidentals will cost approximately $5,000.
Fund raising for Gabrielle began with her schoolmates at Deltona Lakes Elementary School, Deltona, Florida. Through a talent show, spaghetti dinner and numerous other fund raisers, DLE raised $10,500.
Friends of Gabrielle have asked me to help take the fund raising to the next level. I'm challenging Central Florida to come together as a family and rally around the LaVerde family and their adorable little girl. Do your own creative fund raiser for Gabrielle. Let's work together to SAVE GABRIELLE LAVERDE.
Please raise funds throughout the summer. Before school begins, the LaVerde family will be presented with a check from “Central Floridians for Gabrielle” at a press conference. Location & date TBA. Press conference will include recognition of major contributors, music and celebration festivities.
Please mark your contribution: “Central Floridians for Gabrielle.”Contribute to GABRIELLE'S TRUST ACCOUNT
By paypal on Gabrielle’s Website or directly to Sun Trust BankAttn: Jessica for Gabrielle LaVerde / 2602 Enterprise Road / Orange City, FL 32763
1-800-786-8787 or 386-775-8878
To Learn More about Gabrielle visit at: http://www.gabriellelaverde.com/ or email GabrielleLaVerde@earthlink.net
FOR INTERVIEW Contact Family Spokesperson: Gisele Veilleux 386-532-5237
http://www.lloydmarcus.net/
DELTONA, FL/May 9, 2008 Immediate Release/ Contact: Lloyd Marcus 954-934-9588
It all began with 10 year old Ryan Bowling. His mom is extremely dedicated to rescuing animals. One day when she picked Ryan up from school, he asked her an important question. “Mom, isn't saving the life of a kid more important than saving the life of a dog?” Ryan's question caught Gisele, his mom, off guard, but she replied, “Of course!”
Ryan told her about Gabrielle LaVerde, a 1st grader who attends his school. Gabrielle has been diagnosed with a rare fatal disease called Niemann-Pick Type C (Early Childhood Alzheimer's). Life expectancy after diagnosis is 6-10 years. Only 300 Americans have been diagnosed with this disease. Only 500 cases are known world wide. Niemann-Pick Type C is a genetic metabolic disease and causes multiple neurological disorders. Ryan ordered his mom to “Get to work!”
Gabrielle's treatments run $9,000 per month. Her parent's are planning to take her to Mexico for an experimental treatment. The treatment cost $19,000. Airfare, accommodations, car rental, food and incidentals will cost approximately $5,000.
Fund raising for Gabrielle began with her schoolmates at Deltona Lakes Elementary School, Deltona, Florida. Through a talent show, spaghetti dinner and numerous other fund raisers, DLE raised $10,500.
Friends of Gabrielle have asked me to help take the fund raising to the next level. I'm challenging Central Florida to come together as a family and rally around the LaVerde family and their adorable little girl. Do your own creative fund raiser for Gabrielle. Let's work together to SAVE GABRIELLE LAVERDE.
Please raise funds throughout the summer. Before school begins, the LaVerde family will be presented with a check from “Central Floridians for Gabrielle” at a press conference. Location & date TBA. Press conference will include recognition of major contributors, music and celebration festivities.
Please mark your contribution: “Central Floridians for Gabrielle.”Contribute to GABRIELLE'S TRUST ACCOUNT
By paypal on Gabrielle’s Website or directly to Sun Trust BankAttn: Jessica for Gabrielle LaVerde / 2602 Enterprise Road / Orange City, FL 32763
1-800-786-8787 or 386-775-8878
To Learn More about Gabrielle visit at: http://www.gabriellelaverde.com/ or email GabrielleLaVerde@earthlink.net
FOR INTERVIEW Contact Family Spokesperson: Gisele Veilleux 386-532-5237
http://www.lloydmarcus.net/
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