Wednesday, May 14, 2008

Mother of Niemann-Pick Type A writes to me

This parent, after seeing Gabrielle on Fox 35, sent me the following email. Her daughter lost her fight against Niemann-Pick Type A.

"I hope that you recieve this email. I saw the news last night and it was the biggest shock to me when I heard the disease niemann pick. Just last year I had a daughter pass away with niemann pick disease type A. I completley understand what you are going through and I feel so terrible to see others go through this, and I just wanted to let you know that I am here for you for support. If you ever need anyone to talk to that has experience this to. So you can email me anytime as support to you. She is a beatufil little girl.

Ashley"

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